Finding Hope

~Hi Friends~

How to begin a post like this, I’m not really sure.  The last week I have seen my darkest moments, despair, hopelessness, my faith and strength tested, spirits crushed…..

Our sweet and spunky Grayson was diagnosed with Kawasaki Disease. (link to video that explains the disease)  We have been at Rady’s Children’s Hospital in the ICU with the best team of doctors and nurses. Every hour changes, sometimes for the best, sometimes for the worst, his heart is fighting, he is in pain, lots of it and I can’t take it away, it’s not fair.

This song is for our Grayson because we will wait, we will not leave, we will be strong. God will fix your flesh, your heart, your joints and eyes. As the wind blew this horrible disease into our lives it will just as easily blow it away, we will not give up, we love you!

And I came home
Like a stone
And I fell heavy into your arms
These days of darkness
Which we’ve known
Will blow away with this new sun

And I’ll kneel down
Wait for now
And I’ll kneel down
Know my ground

And I will wait, I will wait for you
And I will wait, I will wait for you

So break my step
And relent
You forgave and I won’t forget
Know what we’ve seen
And him with less
Now in some way
Shake the excess

But I will wait, I will wait for you
And I will wait, I will wait for you
And I will wait, I will wait for you
And I will wait, I will wait for you

So I’ll be bold
As well as strong
And use my head alongside my heart
So tame my flesh
And fix my eyes
That tethered mind free from the lies

But I’ll kneel down
Wait for now
I’ll kneel down
Know my ground

Raise my hands
Paint my spirit gold
And bow my head
Keep my heart slow

Cause I will wait, I will wait for you
And I will wait, I will wait for you
And I will wait, I will wait for you
And I will wait, I will wait for you

Mommy; “I just want to be happy again, I want to go home”

~Soon baby soon~

 I have been leaving quick updates on my FB page, it seems the easiest way for now. How can one explain how humbled, grateful and blessed we are by your words,e-mails, notes, encouragement and kind gestures…..THANK YOU!

Ray and Kristin

 

127 thoughts on “Finding Hope

  1. Our grandaughter was diagnosed with this 2 years ago. Today you would never know. She is a happy healthy 12 year old. There is lots of hope. Hang in there.

  2. I have been following your updates on Facebook and I’ve been praying for your little guy and your family. I hope he starts to feel better very soon. Thoughts and prayers your way~gina

  3. Kristin, Ray, and Boys: may you feel god’s warm loving arms around your shoulders during this time, may you feel his love greater than ever before amen.

  4. I’m praying for you all. It’s so kind & brave of you to share the details of Kawasaki disease. May god bless your sweet son & may he heal soon. Please keep us in the loop, as we are hoping for the best outcome.

  5. Girlfriend, I awoke, both yesterday & today & my first thoughts were of Grayson. I’m lifting him & you all up to God several times a day. So, so, so many are praying for him. He is in His hands. Love you! Be strong, and know that we are here if you need more strength.

  6. Prayers for Grayson at our dinner table tonight. Keep your spirits up and make sure you do get some rest when he is resting. He will get through this and all of this will be a distant memory that you will tell your grandchildren about. God Bless XXOO

  7. Oh Kristin.. my heart aches so much for you and Ray… I am praying for your family and Grayson.For a speedy recovery and healing for this little man. Pray without ceasing… we are doing that.
    My youngest had this at age 2. He’s now 20 ( just turned 20 2 weeks ago) , no one would have ever known…. he’s healthy. That is my prayer for your baby.
    We are sending prayers up … you are surrounded by positive thoughts and prayers. He is in the BEST hands right now.
    ((HUGS)) Gee

  8. Our heavenly Father, please please wrap your loving arms around this precious child of God and heal him. We are not worthy of your graciousness but we love despite our sins and we know you always love us. These things I ask in your name…please also wipe away those tears and worry for his Mommy and make this all go away, leaving them with a healthy happy little boy!

  9. Thanks for being a brave mom and sharing your story with us. I’ve seen the FB posts, but didn’t know what was really wrong. Now I can pray with specifics for Grayson and for your family. You’ll never question your strength and faith again when you’re on the other side of this. Know that we are all lifting you all up with love and light.

  10. Oh Kristin – praying for a quick recovery for Grayson –
    and will keep all of you in my prayers while you go through this ordeal………..
    Much love, Suzan

  11. Kristen,
    My heart is breaking for all of you. Please know that I will keep praying for your sweet little Grayson every day and will also keep sharing your updates on facebook. Prayer is so very powerful my friend.

    Blessings,
    Linda

  12. God Bless Grayson and keep him safe. I hope your little man starts feeling better quickly. My thoughts and prayers are with you and your family.

  13. There is nothing worse than a sick child. I know because my little girl is also sick today, but with nothing nearly as serious as what your son has. Keep posting his picture because every time I see the poor little thing’s sweet picture, I am reminded to/and say a prayer for his complete healing. He looks so sweet and pitiful. Praying for you to have strength to deal with this. I know it must not be easy. I can only imagine.

  14. I have been praying for your family and for God’s amazing healing hands to bring y’all comfort and that little boy of yours strength and the endurance to fight this!! Many many hugs for you!!!

  15. I will pray for you. I will pray that as you wait, God will give you the strength to walk boldly through this….as you face what is every mother’s worst fear.

    My heart is with you, Kristin.

  16. With all of the prayers, love and positive thoughts being wrapped around Grayson and your family at this very second, I just know that tomorrow will be a better day, and that your sweet boy will be home again soon and feeling himself again before you know it! hugs and love!

  17. Oh no! My sister-in-law had Kawasaki as a child and my MIL still talks about how scary it was. I know Grayson will get better! Hang in there, Kristin!

  18. My 2 year old nephew is in Rady’s PICU also. I have been reading all of your posts. I have been praying for Grayson. As I commented on your post on FB. I know how hard it is to watch your child suffer. My son had cancer. We were at Loma Linda Children’s for 11 months. I hope and pray that his next blood draw RE: his arteries will be low. I will continue to pray and watch God ‘s miracle unfold on your precious boy

    Blessings to you, your family and especially Grayson.
    Cathy

  19. There is a song that I listened to a lot when my son was so very sick. It is by Mark Schultz. “He’s my son.” I use to listen to it and pray. I hope you can you tube it and maybe listen.

    Love and hugs!
    Cathy

  20. Praying for Grayson and hoping none of the complications come. Being a pediatrician by profession, I truly understand the hardship your going thru. Fortunately we live in a time where medicines can do miracles. Keep the faith dear

  21. My heart and prayers go out to each of you. Can’t wait to read the post that Grayson is able to go home and be happy again. Praying that it will be soon! xxoo

  22. Tears are in my eyes just reading this, Kristin! My heart breaks for the pain he is going through and the pain you’re going through as a mother watching it all happen. Praying for you all! Stay strong!

    Liz

  23. I’m so sorry to hear about this trying time that you and your family are going through. I wish and pray that sweet Grayson will recover soon and be on his way home. Take care. Sharon

  24. Kristin, I’m so very sorry that you and your family are going thru this. Please know that Grayson is in our thought and prayers, and that we are all here for you and your family.

  25. There isn’t much worse in the world than watching your child suffer and not being able to do anything about it. Praying hard and often for Grayson and for you and your family as you walk through all of this. He’s so lucky to have such a strong and loving mother to be by his side. Hang in there, and thanks for keeping all of us updated. xoxo

  26. I came to your blog tonight to link up like I usually do, and then was heartbroken when I read about Greyson. Suddenly, anything I have to blog about seems so trite and trivial. I’m praying for your darling little boy and you and your family. I also posted this link on my FB page asking my followers to pray as well. Many hugs and prayers going out to you tonight, Kristin!

  27. I’ve been reading all your updates on FB, I’m sorry for the lack of comments. What does one say?! I just can’t imagine going through what you’re dealing with and my heart hurts for you. My goodness, the mold, your doggy and now your baby. I think it’s time for some good news. I’m so sorry, but at the same time, I’m hopeful and looking forward to this time next year when all of this is a distant memory for you. Your family is in my prayers.

  28. I’m so sorry to hear about your son! =( I will also be praying here. I hope you feel the prayers of people on your behalf and that the Lord will give you His peace in the middle of this turbulence!

  29. Oh Kristin, a cousin’s daughter living in Illinois had Kawasaki disease and she is completely healthy and okay now. I am positive that Grayson would be alright in no time. Our prayers cant go unheard.

  30. You have a lot of friends praying for you and Grayson, including me from Australia. God always looks after the little ones. Be strong and full of faith and it won’t be long before G is home and you can put all of this behind you. God Bless you all.

  31. Please don’t loose hope and hold on for your little boy… I can only imagine what you are all going through right now… All my wishes for a speedy recovery! Please believe…

  32. I’m so sorry to read that Grayson is sick. I checked on the Internet about the disease I knew nothing about. I hope with the help of competent doctors Grayson will recover and “come back home” as he whishes. I will keep him in my thoughts until the next update.

  33. God bless you all. May your son find healing and happiness soon. You are in our thoughts and prayers.

  34. “ALL things are possible to those that BELIEVE”…keep believing! I ran across your blog today…for a reason possibly. I do believe that our God is a healer…He’s the same yesterday, today, and forever. I have just prayed for your son’s healing and for that it could be a special, quick, touch from God. I also prayed for you and your family to have peace and strength through this ‘trying of your faith’. I will continue to pray!!

  35. Dear Kristen – I am so sorry for what you and your family is going through but pray for God’s strength for you and a peace in knowing that His hand is in the details. Love the stories of complete healing from this disease and pray this for Grayson as well. Blessings to you, Patti@OldThingsNew

  36. I am praying for you and this precious child of God. I will just never on this Earth understand why children, those most innocent of innocents, have to suffer. God bless you and keep you strong…and may He heal your son- xo Diana

  37. Sorry I haven’t left a comment on FB, but I have been following along and praying for your sweet boy. Hang in there! God will see you all through this.

    That is my favorite song. My kids make fun of me for singing it so much. Now its words have new meaning, and I will sing it loud for your Grayson. Sending you love and hugs.
    Carolyn

  38. praying and praying for your Grayson, and for you all. Strength and healing… our amazing God can work miracles. Thank you for sharing your heart with all of us, I can’t imagine what you must be feeling right now… I will continue to pray.

  39. I am so sorry you are going through this with your son! As a Mom with a son with special needs I know how hard it can be at times to be strong. My prayers are with you and your son! Julia

  40. I have just seen this and I am sorry that your sweet child is sick. I want you to know that I will pray. I will also praise as we see God’s healing and strength manifested in your sweet one’s body.

  41. Nothing is worse than having to see your sweet baby boy suffer. When ours was diagnosed with Type 1 Diabetes, I wasn’t sure any of us would get through it. I pray that the Lord will surround you with the tenderest of mercies until he gets better.

  42. There is nothing worse than your children being sick… I pray for you and your family to have your son back home healthy, rid of this horrible disease! Sherry :)

  43. Kristin, watching someone you love so much suffer is a terrible thing. My heart goes out to you. God will bring you through this and you will give HIM the glory. My husband and I will be praying for Grayson, you and Ray and your whole family.

    Love,
    Linda and Jeannie at The French Hens nest

  44. oh my goodness! i go away to look for schools and homes and come back to this?!

    i’ll check hopping over to your fb page now for an update. sheesh! i’m sending lots of prayers and thoughts your way. so so sorry!!!!! hang in there little guy and get better REAL soon!

  45. Hi-
    I wanted to let you know I understand what you’re going through. Four years ago my son was diagnosed with KD when he was 5. I saw your post today as I was waiting with my son for an appointment with his cardiologist. I love your blog and look at it often. If u have any questions about KD I would be more than happy to answer them. The disease left my son with heart complications that we are still dealing with, but we feel very grateful to live close to an amazing hospital and pediatric cardiologists. I don’t know how close you are to San Diego, but the KD symposium they have there every year is amazing. We’ll keep your son in our thoughts and prayers. -Jen Kiracofe

  46. A good friend on mine’s granddaughter was born in an emergecy c section with no heartbeat and not breathing. She was full term and they did all they could do but she has no brain activity. She did get to bring the whole family together to celebrate and mourn her short life. I forwarded your link. The song is awesome and it is like little Arabella is saying she will wait for everyone. Thank you for sharing. Blessings to Grayson and his loving family and friends. I have been praying for him. Bertram Texas

  47. We have a Grayson, too. I can’t imagine going through what you & your Grayson are going through. My youngest, Keller, was a micro preemie at 25 weeks so I do know the pain of having to sit by your baby’s side while they are sick in the hospital. I am praying that your Grayson will be home and healthy soon!
    Sending you all lots of love! *Remember that God makes mama’s really strong!

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